Diabetes. Real and Fake.
Friday, May 30th, 2008I haven’t posted any updates on the diabetes front in quite a while, so that is the task that I’ve assigned myself for today.
Managing Ben’s diabetes continues to be tricky. Partly this is a function of him just being a kid. He’s growing, so his insulin/carbohydrate ratio is always going to be in flux. And occasionally he will misbehave and have a snack without telling us, and without covering the carbs himself. Still, we are stumped by what seem to be bizarre stretches of very high BG levels. At his last checkup, his A1C was running around 9.5…higher than what we want it, but lower that the previous appointment. Currently, his 14 day BG average is around 200 mg/dl. That would equate to a A1C of roughly 8.5. We’d be thrilled if he were below 9 at his July appointment.
On a related note, Grace’s favorite thing to do lately is to pretend to check her BG. She carries an empty container of Ben’s test strips around, and is popping the container open every few minutes and squeezing an imaginary drop of blood onto an invisible test strip, which has been carefully inserted into her invisible meter. She will then happily announce a result. For some reason, she usually picks a number in the 300’s. 369, 358, 338, etc. I’m not sure what her fascination is with these particular numbers, but that’s what she chooses. We’ll say to her, "Gracie, that’s pretty high honey, are you sure you aren’t in the 100’s?" "No, I’m 358." She will sometimes announce that she feels "shaky", and that she needs to check herself. She breaks open the empty tube of test strips and begins the process all over again. At first I would tell her that she shouldn’t pretend to have diabetes…that it’s no fun…that it’s not something to joke about. I’ve given up on that though. I figure it gives her a connection to her brother’s diabetes, and helps her relate to what he goes through on a daily basis. Better than having a kid who doesn’t care at all about what is going on around her.
